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fallingwater

Fallingwater – Maggie Rogers 2018 

My, what a year it has been.  In health, and in life!  I have had to make some of the hardest decisions of my life this year, but I know I am moving in the right direction, and that is what is important.  There are some things I don’t discuss on here, but I have been going through some tough transitions, and am eternally grateful to everyone who has been there for me this year.  Doctors, family, friends, my chronic illness family, thank you for dealing with me when I haven’t always been a good patient/friend.  Life can be rough, but I have some amazing people in my life who have been there doing everything they can to help me get through it.  

I had my final 2018 doctor’s appointments yesterday, and am glad to have a few weeks off from hospitals!!  I saw my primary doctor, and a Gastroenterologist at Northwestern Medicine.   The primary appointment was for my yearly physical/blood work and that all went well.  I saw the GI and that didn’t go as I hoped.  

I had an esophagram a few weeks ago, so this appointment was to follow-up on the results of the test.  The stent in my aorta is pressing on my esophagus, so I thought that was what was causing my difficulty swallowing.  She explained to me, that the pressure is minimal and shouldn’t be giving me the symptoms I am having, so we are going to do a few procedures to explore a little more.   She is going to do an EGD with manometry placement, and endoflip.

Hopefully these tests will give us some more information about what is going on.   I will have this in January.  Also in January I will meet with the doctor about the results from my genetic tests.  eeek.  It seems like each time I think I am nearing the end of my list of appointments I end up with more!! 

I will also go for a follow-up at the AbilityLab in January.  I have been stepping up my strength a little bit so I am excited to see where I am at compared with a few months ago.   I was able to carry a case of water today with minimal pain, which to a normal person sounds dumb, but to me that was a huge milestone!  I still stick to really light weights, but I can tell I am getting stronger every day (still have the upper body strength of a senior citizen, but it’s getting better LOL).  

In April 2019 I will follow-up with my Neurologist and get a few repeat scans to check on my stents and arteries.  I am just trying to keep my head up and take it day by day.   My life is a mess, but it’s a fun mess mostly.  

#onward 

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