Bullet With Butterfly Wings

…maybe not butterfly wings, but I sure have some winged scapulas!

Bullet With Butterfly Wings – The Smashing Pumpkins 1995

My scapulas have been something I have been working on in physical therapy, and my PT examined them a bit today at my session, and I could tell they were not working “properly” I didn’t realize how much they winged out until I snapped a few pictures of them!

This is happening for a number of reasons; physical trauma, nerve damage, thoracic outlet syndrome, torn arteries, subclavian steal syndrome, what I suspect to be damage from surgery in 2017, and a connective tissue disorder that I was born with… the list keeps growing.

There is a reason I drive/commute over an hour each way to physical therapy at the Ability Lab in downtown Chicago, and that is because they are THE BEST. I don’t just mean my experience, they are the #1 physical medicine and rehabilitation hospital in the country. My PT checks how I am moving with every exercise and modifies what needs to be changed to suit me. My neck exercises are still pretty hard, so we moved those down a notch, and are stepping up the lower scapula ones a little more. When you have an overall dysfunctional body it’s hard to figure out what to focus on yourself, that’s why I have the professionals helping me.

I am trying to really push myself, and can already see some improvement in my functional abilities. Less weakness in my arm and hand, more strength in my shoulder, and less popping of joints. I am sore all the time, and triggered a migraine last week, but I know it will be worth it in the long run.

Since I had the botox on my esophagus last month, I have noticed a huge difference in my ability to eat as well. I still don’t have much of an appetite and have to remind myself that I HAVE to eat, but it is getting better. My esophagus was spontaneously spasming before, and it could get scary. Often times when this would happen I would feel like I was choking, and couldn’t quite catch my breath afterward. It has only happened once since the botox, and honestly it was because I was eating WAY too fast. I haven’t gained any weight back, but I have stopped losing weight, and I am at a healthy weight for my body, so the doctors and I are not worried about it anymore; as long as I am getting enough food/nutrition. In April I will follow-up with the GI at Northwestern about that procedure, I’ll also follow up with my vascular neurologist and get repeat scans of my blood vessels/stents to make sure all is good in my vascular health.

All in all, making good progress and seeing some good results. I don’t know that I’ll ever get to 100% again, but I’m having more good days than bad ones, so I am a pretty satisfied patient for once!

#onward !!


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