You Can’t Always Get What You Want The Rolling Stones I saw her today at the reception A glass of wine in her hand I knew she would meet her connection At her feet was her footloose man No, you can't always get what you want You can't always get what you want You … Continue reading you can’t always get what you want
Even though I look healthy, I have some serious medical problems going on. While my cervical artery dissection is healing very nicely, from my last scan, it still places me at being high risk for a stroke, and I still have "stroke-like" symptoms every day. It can be scary when you don't know what it … Continue reading my story – part 15 – cervical artery dissection registry
...so far I have made fishing, gardening, nails, hair (dying, cutting, styling, braiding), and anything else I can think of into occupational therapy. Gardening has been amazing. I am still learning to pace myself, when I feel good I tend to do way too much. I am finding a happy medium. oc·cu·pa·tion·al ther·a·py noun noun: occupational … Continue reading My Story – Part 13 (occupational therapy)
A friend of mine recently started practicing Reiki healing, and as I have said before, I will try anything at this point! I had my first session this afternoon and it was a very interesting experience. I am still trying to figure out what all of this means, but this what my Chakra's look like; … Continue reading Third Eye Blind – Semi-Charmed Life
... he never came back from Copperhead Road -- Steve Earle ....that's just the way I am 🙂 - Charlie Puth ❤️❤️❤️❤️ My new cat Javy Baez #allstar He followed me halfway around the block 😹😹😹😹 This is what my playlist looks like for 30 min 😂 .... I use YouTube because it learns what … Continue reading My Story – Part 9
Everything hurts but I made it!! Day 5!
I felt like I went back to school today and It was really awesome. 😀 I got a fancy book bag and went to classes about mindfulness, Bio-feedback, PT, OT, Pain Psychology, and saw the doc. I really like this approach they take at the Shirley Ryan Ability Lab. Basically I am assigned one hour … Continue reading First day at Shirley Ryan Ability Lab!
The spoon theory is a great way to explain chronic illness/chronic pain to someone that has never experienced it. A woman named Christine Miserandino made up this theory while dining with a friend to explain the limited energy most people with chronic illnesses have. Miserandino suffers from Lupus and while each condition is different, the … Continue reading Spoonman “the Spoon Theory ” 🥄
"I call these photos: Being a Rebel" 🤣😂🤣 I love this song. I'm referencing it because it feels pretty good to have a few Doctors who are working with me and helping me figure out what's wrong. As for the rest of them... I'm done! The only one left to find is a good Primary … Continue reading We’re not Gonna Take It!
I'm an INFJ. I feel like that explains a lot about me. If you aren't familiar, it's a personality type. There are 16 different personality types under the Myers-Briggs Type Indicator (MBTI). I've always known I was a little different, but I came to find out I am ever rarer than I ever knew! Only … Continue reading Here
I have a really big variety of music I listen to. I think I pick up a lot of what is around me, and then I listen to it until I know every word and every song LOL, it's just something I've always done! I know the entire Hamilton Soundtrack and I have not even … Continue reading Get Up, Stand Up
I was reminded yesterday to Breathe. Sometimes I forget that. This can get so stressful and overwhelming sometimes, but always important to remember. Even more than just remembering to Breathe, I'm going to start incorporating more meditation into my day. When I am in a ton of pain, and stressed out, it is very easy … Continue reading Just Breathe …
Well another one on the couch ... we have been trying to go out all week, but I haven't been feeling good. Tonight was going to be date night but my Migraine will not stay away and it leaves me being able to do nothing but enjoy the few hours I do feel ok 🙂 … Continue reading Another Saturday Night …
I am really lucky. Like really really really lucky. Someone is definitely looking out for me. Not only did I survive tearing my aorta, but I have also now torn a second major artery, and somehow escaped the worst case scenario again. This can get frustrating, but I am really glad they found both before … Continue reading I’m really lucky
I'm home from the hospital and I don't even know where to begin.... This picture sums up how I feel about my recent hospital visit 😦 I am so happy that I listened to my crazy body and went to the ER on Tuesday. I couldn't get out of bed all day, because the pain … Continue reading Home from the Hospital
Originally Published: 03/30/18 at 12:46 pm I was starting to think the Doctors didn't believe my pain, but I have been reading alot of people's posts on a Chronic Pain message board and it seems every person with significant pain is having a similar experience to me. This breaks my heart, because I know what … Continue reading How the Opioid Crisis is Impacting Pain Patients – my thoughts